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FAIRLYZ Blog: Data Sharing in the Era of AI


  • Part 2: Enhancing EHR Data Quality: Key Findings from Recent Studies

    Part 2: Enhancing EHR Data Quality: Key Findings from Recent Studies

    This post is Part 2 of our 2-part series on recent research studies looking at EHR data quality. Part 1 presented 3 studies from 2025, and Part 2 presents 2 more recent studies and a proposed technological shift that avoids…

    Mar 6, 2026

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    by

    Patricia Buendia
    in AI Governance, Data Curation, Data Quality Control, Health Data

  • Part 1: Reactive vs. Proactive: The High Cost of Unvalidated EHR Data

    Part 1: Reactive vs. Proactive: The High Cost of Unvalidated EHR Data

    Electronic Health Records were meant to be the backbone of modern healthcare and AI clinical prediction system. Instead, the 2025 research landscape paints a sobering picture. EHR data is incomplete, inconsistent, and often wrong at a scale that threatens clinical…

    Feb 10, 2026

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    by

    Patricia Buendia
    in AI, Data Curation, Data Quality Control, Data Visitation, Health Data

  • Autonomous Agents Visiting Data

    Autonomous Agents Visiting Data

    The Google AI Agents Intensive Course (5DGAI) debuted in March 2025 (First 5DGAI) and returned in November 2025 (second 5DGAI), offering developers a front-row seat to the rapid evolution of agentic systems. The First 5DGAI course focused on foundational skills:…

    Nov 13, 2025

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    by

    Patricia Buendia
    in AI, AI Governance, Data Securiy

  • Data Visiting and the Future of Inclusive Biomedical Research

    Data Visiting and the Future of Inclusive Biomedical Research

    In the age of AI-driven discovery, biomedical research is undergoing a quiet revolution—one that’s not just about faster algorithms or bigger datasets, but about rethinking how we access and share data across borders, institutions, and communities. The Geographies of Trust…

    Aug 29, 2025

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    by

    Patricia Buendia
    in AI, Data Sharing, Data Visitation, Health Data

  • Data Visiting in Patient-Controlled Health Wallets

    Data Visiting in Patient-Controlled Health Wallets

    Back in 2019, we ran a project we called “Symphony” alongside three blockchain pioneers, driven by a bold vision: to empower patients with full control over their health data through a personal data wallet. The goal was to let individuals…

    Aug 4, 2025

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    by

    Patricia Buendia
    in Data Visitation, Health Data, Personal Health Data

  • FAIR Data Trains

    FAIR Data Trains

    The FAIR Data Train is a data analysis approach that combines two key elements: As described in the LIFES Networking Meeting from December 2024: The FAIR Data Train approach was introduced as a domain-agnostic system designed to enhance automated interoperability…

    Jun 20, 2025

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    by

    Patricia Buendia
    in AI, Data Visitation, FAIR Data Principles, Interoperability

  • Has Generative AI Killed the PID Star? – PIDs Part 2

    Has Generative AI Killed the PID Star? – PIDs Part 2

    The role of Persistent Identifiers (PIDs) – those enduring signposts in the digital landscape – is facing a fascinating challenge from the rise of Generative AI. At a recent meeting of the Research Data Alliance (RDA) PID Interest Group, experts…

    Apr 15, 2025

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    by

    Patricia Buendia
    in AI, FAIR Data Principles, GenAI, Metadata, Workflow

  • The PID Paradox – PIDs Part 1

    The PID Paradox – PIDs Part 1

    The digital age has ushered in an unprecedented era for scientific discovery, promising accelerated progress through open data sharing. Yet, beneath the surface of progressive policies and sophisticated technological solutions lies a potent psychological barrier: the fear of being “scooped.”…

    Apr 11, 2025

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    by

    Patricia Buendia
    in Data Sharing, FAIR Data Principles, Metadata

  • Federated Data Platforms vs. Data Visiting Technologies

    Federated Data Platforms vs. Data Visiting Technologies

    What technologies and methods enable the access and analysis of sensitive data using AI/ML, while preserving data privacy and avoiding centralization? That’s the challenge federated data and data visitation technologies aim to solve. But are they the same thing? Not…

    Mar 16, 2025

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    by

    Patricia Buendia
    in AI, Biomedical Data, Data Visitation, FAIR Data Principles, Federated Network, Scientific Data

  • Dataset Digital Twin in Biomedical Research

    Dataset Digital Twin in Biomedical Research

    Imagine a holographic view of a patient—a Biomedical Digital Twin—reflecting their unique physiology, lifestyle, and medical history. This isn’t science fiction; it’s a rapidly evolving field transforming healthcare and research. This article explores various types of digital twins and their…

    Jan 17, 2025

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    by

    Patricia Buendia
    in Biomedical Data, Data Visitation, Dataset Digital Twin, Digital Twin, Federated Network, Metadata, ML, Scientific Data
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